Friday, September 26, 2008

Reporting From Room 3017

As most of you have heard, things took a turn for the worse with our poor Zaden (aka Tank). The Dr. office called late on Wednesday night and were concerned about some of the blood work that came back. When talking with the on call Dr. about 10:30pm , Tank was finally calm and relaxed sleeping in our bed. The Dr. thought that if that was the case that it was more important that he was comfortable and just to keep our 2:00 apt the next day with Dr. Joe. But then told me not to hesitate to call him if anything changed.
Well Tank slept for a bit then had his Daddy up and down with him every hour or so and they did a lot of rocking. But he was soothed so we weren't too worried until about 6am when his fever spiked again. So we had the on call Dr. paged and he told us to go to Primary Children's Hospital ER and that he would call ahead and let them know we were on our way and give them some info. We got the other kids together and got the babysitter ready to take them and sent them to her then headed up and got here around 8am.
After a few hours and a few labs they still had no idea what was going on with this poor little boy but decided that he was too sick to go home and admitted us to the hospital, which took another 3-4 hours of us sitting there waiting. Now during that time, Mike had mentioned to the resident Dr. that his younger brother had Kawasaki Disease when he was young and asked if it could be that. She replied that he was too young for that and pretty much dismissed that idea. So after getting a room, his regular Dr. contacted the staff here and ordered a bunch more blood work/labs to include tests for Kawasaki Disease...hmm where have we heard that?
Turns out that's most likely what this whole thing has been. They ran more labs this morning to double check and to also check for a couple other viruses just in case. But they are going to start treating it as if it is at this point. We also have an EKG scheduled at 11 am to make sure that this didn't damage the arteries in his little heart. Wish us luck and I will update this post at the end of our day. You can read more about Kawasaki Disease Here.

*Update: The nurse says the EKG came back fine, with no abnormalities..hooray! However, they will have to keep their eye on it probably for a couple of years and on his platelet counts, just in case. And he seems to be somewhat responding to the gamma globulin (purified antibodies) that they are treating him with. His rash is pretty much gone and he seems a lot more comfortable, he's been sleeping a lot today and this afternoon his appetite is back so he's eating some and he's keeping it down. Dr. Joe says we have to stay until his fever breaks. That's the one thing that seems unchanging. It's not going up any which is good. But it's not coming down either. So we'll see what happens overnight. Mike brought in Caleb and Zaric tonight for a little while. Caleb was a little freaked out when he first saw his brother with all of the monitors on but settled down when we explained them to him and then was telling the nurses all sorts of stuff. Zaric was smiley like always so it was nice to talk and play with a happy baby since I have been cooped up with his sick miserable one the last couple of days. I can't wait until he gets back to being Tank too. I am crossing my fingers to go home by tomorrow night.

1 comment:

Mindy said...

We are thinking of you!!! Take care of that little guy and yourselves too. I'm sure you must be worried. He is in good hands at Primary Children's. I'm happy you're there.